So I decided to write a post about being a coeliac, I was making G’s sandwiches this morning and every so often when i’m having to do something a certain way because of being a coeliac, I get a little bit sad. For the first few years of having the illness I coped ok, it was hard getting used to it but I was so relieved to not feel ill anymore. The difference not being ill made to my life was extraordinary and this far outweighed any problems I had, in the last couple of years though I’ve struggled a lot more.
I can not really enjoy eating out EVER unless I have fully prepared and taken my own and that includes going out for the day, getting some fish and chips, food stands, picnics etc Eating lunch means always taking my own, cup cake decorating, tea parties, having a cup of tea and biscuit with a friend… Think of every time in a day you have or think about food.. thats how many times a day I’m reminded i’m a coeliac… so you don’t think about food that much.. well I do because..maybe it’s become an obsession.
Well it did, I HATED food, DESPISED it, I felt like I had to think about it everyday and it wasn’t good thoughts. I was afraid of it too, I forgot about the everyday details of being ill all the time – I did survive after all – and became very scared of accidentally eating some gluten.
So now i’m trying to stop this obsession and i’m doing quite well, I might even be starting to..enjoy food! I guess when you have something for life you are going to have ups and downs, I think maybe the past couple of years was a natural reaction to being told that you have a lifelong incurable illness, I don’t know if any other coeliacs have felt this? But now to the positive, i’m starting to deal with it a lot better – though I will still have blips of course – no ones perfect! – and so to my list this morning of the things that frustrate me being a coeliac..
Having to take extra spread on the knife when making my husbands sandwiches so that I don’t have to put the knife back in and then having too much and wasting it because you can’t put the spread back in the pot
Having to be extra thankful every time someone makes me food because they had to make it gluten free, especially when its emphasised the trouble they went to…
The feeling of guilt when people have had to go to extra trouble
Having to check when you KNOW there is an ingredient you can’t eat and someone has just missed it
The feeling of guilt when you can’t eat what has been specially made for you
When someone demands that you’d be fine just having a little bit, they really don’t know and to be honest – how dare they
When someone says they don’t like making you food because they don’t know what you can and can’t eat – it’s so much easier for you because you know…
The glare of irritation that you get by people who think its a fad diet and it being inappropriate to scream that you don’t choose this diet and to give a detailed description of coeliac disease and what it does to your insides
The need to always refer to it as an autoimmune disease, you know like diabetes, because no one would frown at someone with diabetes (and then feeling guilty again because you don’t have to inject insulin)
The way you have to smile and say its fine when someone hasn’t made you any food, its ok I’m happy with the vegetables – then watching everyone else tuck into the steak and ale pie
The look of confusion on the waiter/waitresses face when you ask if its gluten free followed by a confident response that it is – hmmmm
Jacket potatoes – (Ok I love the ones I make at home but you know they’re never as good in a cafe/restaurant because they are reheated) Almost always my one option
The time it takes for others to pick off the menu, when you have no options, you get really quick
VEGETARIANS (how is a lifestyle choice more acceptable than an illness?!!)
Oh look the label says its ok for vegetarians – but can I eat it? No? Yes?…?
When the person on the BBQ mixes the gluten free sausages with the vegetarian ones – I might as well eat a loaf of bread
Wheatabix displays in Tescos – I just want to ram them with the trolley
When someone has left a product containing gluten in the ‘free from’ section
Those wheat free cakes that are in the free from section but contain gluten – surely they should be labelled in very big letters BUT CONTAINS GLUTEN then when someone proudly dishes it out me, I don’t have to feel extra guilty when I don’t eat it!
Asdas Free from section on the same aisle as the Flour – is this some kind of joke?!
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